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The Alzheimer's Library
Booklet: End of Life: Helping with Comfort & Care

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/Home/Caregiving and Alzheimer's/Caregiving for Different Alzheimer's Stages/5. Caregiving for End-of-Life Alzheimer's Patients/Booklet: End of Life: Helping with Comfort & Care


11. Resources
Votes:23 Comments:0
If you are interested in learning more about any of the topics in this booklet, here are some other resources for you to explore. Some of these are also listed in the To Learn More section found at th READ MORE
http://www.nia.nih.gov/HealthInformation/Publications/endoflife/10_res...

10. Closing Thoughts
Votes:29 Comments:0
Many Americans have little experience with someone who is dying. But, when the time comes, unless the death is unexpected and quick, there are choices to be made. These may not be easy. But planning a READ MORE
http://www.nia.nih.gov/HealthInformation/Publications/endoflife/09_clo...

9. Planning for End-of-Life Care Decisions
Votes:34 Comments:0
Because of advances in medicine, each of us, as well as our families and friends, may face many decisions about the dying process. As hard as it might be to face the idea of your own death, you might READ MORE
http://www.nia.nih.gov/HealthInformation/Publications/endoflife/08_pla...

8. Getting Help For Your Grief
Votes:39 Comments:0
Losing someone close to you can make you feel sad, lost, alone, and maybe even angry. You greatly miss the person who has died—you want them back. You might have also been so busy with caregiving th READ MORE
http://www.nia.nih.gov/HealthInformation/Publications/endoflife/07_get...

7. Things to Do After Someone Dies
Votes:7 Comments:0
Immediately following death, nothing has to be done. Take the time you need to start the grieving process. Some people want to stay in the room with the body; others prefer to leave. You might want to READ MORE
http://www.nia.nih.gov/HealthInformation/Publications/endoflife/06_thi...

6. What Happens When Someone Dies
Votes:12 Comments:0
When death comes suddenly, there is little time to prepare. On the other hand, watching an older person become increasingly frail may mean that it’s hard to know when the end of life begins because READ MORE
http://www.nia.nih.gov/HealthInformation/Publications/endoflife/05_wha...

5. Understanding Health Care Decisions
Votes:37 Comments:0
It can be overwhelming to be asked to make health care decisions for someone who is dying and no longer able to make his or her own decisions. It is even more difficult if you do not have written or e READ MORE
http://www.nia.nih.gov/HealthInformation/Publications/endoflife/04_und...

4. Dementia at the End of Life
Votes:23 Comments:0
As they reach the end of life, people suffering from conditions like Alzheimer’s disease (AD) or Parkinson’s disease can present special problems for caregivers. People live with these diseases fo READ MORE
http://www.nia.nih.gov/HealthInformation/Publications/endoflife/03_dem...

3. Finding Care at the End of Life
Votes:29 Comments:0
Decades ago, most people died at home, but medical advances have changed that. Today, most Americans are in hospitals or nursing homes at the end of their lives. Some people enter the hospital to get READ MORE
http://www.nia.nih.gov/HealthInformation/Publications/endoflife/02_fin...

2. Providing Comfort at the End of Life
Votes:34 Comments:0
Comfort care is an essential part of medical care at the end of life. It is care that helps or soothes a person who is dying. The goal is to prevent or relieve suffering as much as possible while resp READ MORE
http://www.nia.nih.gov/HealthInformation/Publications/endoflife/01_pro...

1. Introduction
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At the end of life, each story is different. Death comes suddenly, or a person lingers, gradually failing. For some older people, the body weakens while the mind stays alert. Others remain physically READ MORE
http://www.nia.nih.gov/HealthInformation/Publications/endoflife/defaul...
"End of Life: Helping With Comfort and Care" hopes to make the unfamiliar territory of death slightly more comfortable for everyone involved. This publication is based on research, such as that supported by the National Institute on Aging, part of the National Institutes of Health. This research base is augmented with suggestions from practitioners with expertise in helping individuals and families through this difficult time. Throughout the booklet, the terms comfort care, supportive care, and palliative care are used to describe individualized care that can provide a dying person the best quality of life until the end. Most of the stories in this booklet are fictitious, but they depict situations that reflect common experiences at the end of life.
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